A reflection of life. My life journey with brainstem cancer.
One evening last week on the sofa:
Me: Tobi, are you aware of my limited time?
Tobias: Yes… and I’m scared. I want to spend the rest of my life with you.
…
Tobias: I am aware of the circumstances of dipg. There’s no magic pill to cure it. Your treatments now are to prolong your survival time with the highest possible quality of life.
Unfortunately we are living on a battlefield, not a playground.
Continue reading “LIFE IS A BATTLEFIELD”Bon dia! I’m currently in the crowded, touristic city of Barcelona. Today is Black Friday, so we want to go shopping. I will meet Tobias in the city center after he finishes work. One problem is that I should take the subway by myself to get there.
Continue reading “FROM FEAR TO FEARLESS”Good bye summer, hello autumn.
Titien: “Our chili bush looks cold, we should move it inside”.
Tobi: “Ok, then I’ll move it to the bedroom”
Titien: “No way, Jose! Move it to the living room”!
Tobi: “It needs to be relatively cold in winter and still nights light. Our bedroom has a big window with morning sunlight and we never heat it.”
Titien: “ok execute to bedroom then”.
Now I have a chili bush 🌶 and lemon tree 🍋 in my bedroom.
Continue reading “WHO GROWS OUR CHILI PLANT?”Highlight: I had hair cut 🙂
Continue reading “HOPE AGAINST HOPE”Be present with what is left.
Continue reading “IF ONLY YOU KNOW”
Depression is not an identity!
Continue reading “SAY NO TO SUICIDE!”As a a daughter, and a wife who is fighting cancer / DIPG, like many of us, our faith in the almighty God was shaken.
Continue reading “BAD THINGS HAPPEN TO GOOD PEOPLE”I follow the page of DIPG Support and Awareness. I read a girl today celebrating her 8 years old birthday, she is 4 years living with DIPG. An odd and wonderful story in DIPG world.
Continue reading “WHY IT DOESN’T WORK?”This early morning, I was crying and sad assuming some of our friends might think how poor we are, especially my husband, having a wife with a fatal brainstem tumor. Guilt grabbed my heart and mind, what is good things left from me I could give him? I am just a burden. Negativity kept punching me more, tried to drown my soul.
Continue reading “I AM NO VICTIM!”