About Me

My name is Titien Maier. I was 36 years old when I was sentenced with incurable high-grade brainstem cancer in May 2017. I am a daughter, a sister, a wife, a friend, and a believer.

This is the true story about my journey living with cancer.

I transparently share with you my experiences, my sadness and sorrow, my pain and anxiety, and my joy and triumph. A simply human being.  

I am happy to share with you what I learned about the meaning of life, who I am, who God is, what matters in life, love, hope, purpose, and many more essential questions in our life. A reflection of life.

I dedicate my stories to you. I hope you will discover something in my stories, that will bring light and hope in your life, that is God is with us.

Enjoy reading!



The photo shows me and my husband, Tobias.

Please leave comment below, this is my guestbook.

28 Replies to “About Me”

  1. I wish that cancer researchers find a Cure for DIPG , I wish you total healing ;Even in the dark moments you have to trust the plan of God , have Faith , and enjoy every moment of your life ❤️❤️😘!!

  2. Dear Titien!!
    You are so brave! The journey you are on is beyond words!!
    So so very thrilled tat in spite of what you are going through, you are standing strong having God with you! May God continue to use you mightily to reveal His Perfect Plan & Will for you & Tobias! Tobias is so gracious to be journeying alongside you! May God grant divine healing to you according to His timing & will!

    Miss our fellowship time in Beijing! Those were precious moments!!

    The Lord bless you & Tobias abundantly with favor & anointing! The Presence of God fills your hearts & home daily! Continue to be strong and impact those God brings your way! Shine forth like a Lighthouse to those in darkness n show them the Light!

    The Shalom peace of God surrounds & encamps both of you!

    Love you so much Titien!

    Love & hugs
    aunty Doris

    1. Hello Aunty Doris,
      Wow I’m so happy to receive your message. Yes, I miss our fellowship in BICF. I still remember your energetic, happy go lucky, always smiling, positive vibes…. oh and also your lovely Singaporean English accent 😂 You’re a blessing to people surround you 🤗

      Thanks for keeping me and Tobias in your prayer. These past 2 years, although I am suffering from DIPG, but I live a happy life and blessed abundantly. This is the fruit of your faith and prayer.

      Blessings to you too, and send my regards to the prayer team in Beijing.
      Miss you 😘 Love and hugs, – Titien

  3. Dear Titien..
    I am Irene’s sister.. 🙂 Helloww…
    During my quite time, I found your comment in
    “Kubersyukur Bapa “Cover song.. and by chance I suddenly encountered and read your blog
    Jiayouu!! Feel like sharing you scriptures..may Holy Spirit gives you courage and strength all the time!! ^___^

    15:4 Tinggallah di dalam Aku dan Aku di dalam kamu. Sama seperti ranting tidak dapat berbuah dari dirinya sendiri, kalau ia tidak tinggal pada pokok anggur, demikian juga kamu tidak berbuah, jikalau kamu tidak tinggal di dalam Aku. “Abide in Me, and I in you. As the branch cannot bear fruit of itself, unless it abides in the vine, neither can you, unless you abide in Me.
    15:5 Akulah pokok anggur dan kamulah ranting-rantingnya. Barangsiapa tinggal di dalam Aku dan Aku di dalam dia, ia berbuah banyak, sebab di luar Aku kamu tidak dapat berbuat apa-apa. “I am the vine, you [are] the branches. He who abides in Me, and I in him, bears much fruit; for without Me you can do nothing.
    15:6 Barangsiapa tidak tinggal di dalam Aku, ia dibuang ke luar seperti ranting dan menjadi kering, kemudian dikumpulkan orang dan dicampakkan ke dalam api lalu dibakar. “If anyone does not abide in Me, he is cast out as a branch and is withered; and they gather them and throw [them] into the fire, and they are burned.
    15:7 Jikalau kamu tinggal di dalam Aku dan firman-Ku tinggal di dalam kamu, mintalah apa saja yang kamu kehendaki, dan kamu akan menerimanya. “If you abide in Me, and My words abide in you, you will ask what you desire, and it shall be done for you.
    15:8 Dalam hal inilah Bapa-Ku dipermuliakan, yaitu jika kamu berbuah banyak dan dengan demikian kamu adalah murid-murid-Ku.” “By this My Father is glorified, that you bear much fruit; so you will be My disciples.
    15:9 “Seperti Bapa telah mengasihi Aku, demikianlah juga Aku telah mengasihi kamu; tinggallah di dalam kasih-Ku itu. “As the Father loved Me, I also have loved you; abide in My love.
    15:10 Jikalau kamu menuruti perintah-Ku, kamu akan tinggal di dalam kasih-Ku, seperti Aku menuruti perintah Bapa-Ku dan tinggal di dalam kasih-Nya. “If you keep My commandments, you will abide in My love, just as I have kept My Father’s commandments and abide in His love.
    15:11 Semuanya itu Kukatakan kepadamu, supaya sukacita-Ku ada di dalam kamu dan sukacitamu menjadi penuh. “These things I have spoken to you, that My joy may remain in you, and [that] your joy may be full.

  4. Dear Titien, we met two years ago at the award cermenony of the Klar-Text award of the Klaus-Tschira-Foundation in Heidelberg. I know you husband Tobias for some years, and he and I are frequently in touch on Strava — the sports tracking site. Today I saw the headline of his most recent post (Spaziergang, warten auf Titiens Chemo). And then it clicked and that’s how I came to read your website … Right now I am thinking and processing all the information. All I can say at the moment is — respect! I loose hope and fate sometimes because of little things. When I read your website, I know that I have no reason. My best wishes to both of you, Wolfgang

    1. Thanks Wolfgang for reading my blog and writing me a heartwarming comment. I’m so glad that my stories cheers you up. I wish you a wonderful 2020, with good health and overflowing joy. 🤗

  5. Dear Titien,

    By a huge coincidence I came across your page here, which moved me tremendously. People have already written how inspiring you are – and I can only repeat that.

    I only shortly had the chance to get to know your husband as he was a trainer in one of the seminars I visited quite long time ago. There was something pretty interesting about him – had no clue what it was. Just a feeling. Reading your story, I believe it is you and your relationship that makes you both so special.

    You two are going through an extraordinary life together with unbelievable hights and most likely unbelievable lows. Anyways, it is going to be YOUR story: A story of strength, belonging and once-in-a-lifetime relationship.

    I have been working as a researcher in clinics and personally got to know glioma patients. I had the chance to be follow one of them a bit closer. I will never forget what that time taught me. I am not saying its easy, I am not saying its fun. You know much much better than me about the suffering, sadness and sacrifices this disease brings to you and your loved ones.

    I wish you both from the bottom of my heart that you two have the chance to grab every opportunity of togetherness that you‘ll have.
    You can both be really proud of what you found in each other!

    1. Hi Karin,
      Thanks for your uplifting comment 😊. This is also about a true love story 😉, and yes we’re so grateful to found each other. Tobias is indeed a special person and a very dedicated scientist/trainer.

      Thanks for reading my stories, I hope for love and joy overflow in your life. Stay safe and stay healthy 🤗


  6. Hello Titien,

    I somehow landed on your page through one of Tobias tweets. I was really touched by several of your posts about your life since 2015 and you made me think about several aspects of my own life, i recently turned 30.
    in short: Thank you!

    your situation brought me close to tears. I wish you all the comfort you can get under these circumstances and i hope this world has some more precious moments for you up its sleeve even though time seems to be running out. You wrote a lot and you can be certain that i will return here in future.


    1. Hi Alexander,
      Thanks for reading my stories.
      And congratulations, welcome to 30s clubs 😂 the best!

      It’s gonna be a lot of challenges,
      but exciting one,
      especially in this pandemic season. Enjoy the ride pal.
      Welcome you anytime to read my stories again.
      You’ll find out what matters in life, what’s purpose, what’s meaning in life.
      I hope it will give you a bit of inspiration.
      Stay happy and healthy. All the best! ❤️ 🤗
      – Titien

  7. I just learned about your story recently due to Instagram . You are a very beautiful and strong woman and it pains me that you have to endure so much. I will keep you in my prayers. God bless you.

    1. Thanks Mari ♥️😘😊👍
      Thanks for remember me in your prayers.
      God bless you too 😊

  8. Thank you for this precious blog Titien. A document that oozes love, honesty and spiritualty, and is your gift to the world. You have a real talent for writing….I am tearful yet uplifted when I read you.
    Hope you feel the internet love! 😍

    1. Hi Marcus,
      Thanks for reading and your heartwarming encouragement 🥰😊.
      Enjoy warm summer ☀️
      Stay shining, happy and healthy 😉
      Love, Titien

  9. While I stumbled upon your story randomly, and I don’t know you, I feel an inexplicable level sadness that you are going through this. You’re courage cannot be put into words. I’m so sorry that this is happening to you however you will be immortalized through your journey which I will most likely remember for the rest of my life.

    Gonna borrow a quote from one of my favorite movies:

    “I don’t know who you are. Or whether you’re a man or a woman. I may never see you or cry with you or get drunk with you. But I love you” – V for Vendetta

  10. While I stumbled upon your story randomly, and I don’t know you, I feel an inexplicable level sadness that you are going through this. You’re courage cannot be put into words. I’m so sorry that this is happening to you however you will be immortalized through your journey which I will most likely remember for the rest of my life.

    Gonna borrow a quote from one of my favorite movies:

    “But what I hope most of all is that you understand what I mean when I tell you that even though I do not know you, and even though I may never meet you, laugh with you, cry with you, or kiss you, I love you. With all my heart, I love you.” -V for Vendetta

  11. Dear Titien,

    actually I was a student, when I joined a talk of Tobias at our university years ago and after that talk I wanted to do more to spread the amazing milestones you can reach with science to non-scientists. Days and nights researchers are working to understand cancer or other sicknesses and so do I.
    And today, right now, I can only cry like a child, when I am reading your blog. I absolutely can not feel, what you feel, but I am so so so sad for your situation, for being trapped in that body and I admire your strength so much for still writing and sharing your thoughts and being part of this world. All your thoughts about god and belief, they are touching me right through my heart. In such a situation I can’t belief in science anymore and I just think, why can’t we be faster in research and why can’t we understand more and why can’t we work more efficient? Why is time always against life and why is everything so…unfair.
    On the other hand I am so happy for you, that you were lucky to meet somenone that loves you unconditionally. Maybe you got a gift in time, many people wait their whole life for. Maybe time was not running against you on this specific matter. ..I am thinking of you, although we do not know each other.

    1. Thanks Eda for your uplifting comment.
      I am so happy that my stories have inspired you.
      Thanks for working on science.
      We need people who work and dedicate their life on the science, amazes me. Thanks ya 👍😘
      Yes, I’m lucky to have true love ❤️
      I hope you too
      You’re deserve to be loved
      Have a wonderful summer

      1. Thank you, Titien 😊
        I am sure, it is not rocket science, that keeps our minds alive, it is the love of and belief in everything we are convinced of.
        I absolutely understand, that you love whipped cream 🤭 as I read this these days❤️ and wish you an endless time with this joy 👩‍🔬👩‍🚀🤲🏻 Lovely hugs, Eda

        1. Thanks Eda ♥️
          Yes, I found out that homemade garlic whipped cream so delicious and Tobias is a great baker too, makes me so happy 😁
          Hugs you too 😊

  12. Titan, I’ve been reading your stories and posts for a while now and I’m just so touched by you. I pray for you and your Tobias. He truly is amazing. I pray for strength and guidance. I will never forget you and the way you see things. You taught me a lot. ❤️

  13. Dear Titien, miss the days with the bunch of Indonesian girls at BICF in Beijing! God is so loving to have blessed you with Tobias and many friends who love you. May the Lord continue to give you and everyone around you now the strength. Thank you for so courageously face the situation let alone sharing it so honestly in your blog. Your faith shall remain strong. May the Lord use your sharings in many many ways to edify Him and his promises.
    ❤️ Love and hugs … Mina

  14. Hello Titien I’m Ihat. I’ve started to read your journey here. Thanks for sharing with us 🙂 and sorry for coming late visiting your blog. I’ve just known also 😀

  15. Hello, I found this blog after looking for information of adults with DIPG – it certainly is a very rare cancer in adults and support is difficult to find. My brother has recently(October 20) been diagnosed at the age of 40 and I have found the information on Titien’s treatment and the blogs so helpful and informative. I just wanted to say THANK YOU.

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