A reflection of life. My life journey with brainstem cancer.
Titien and I have a mantra that we’ve been following at least since her being dignosed with DIPG: live in the here and now. What sounds like a hackneyed phrase from the self help literature is actually meaningful to us. We have realized how valuable the time we have left is.
Continue reading “HOW TO LIVE IN THE HERE AND NOW? (by Tobias)”
I am loved unconditionally.
I am loved physically.
I am loved emotionally.
I am loved spiritually.
I am beyond blessed.
I am the luckiest and the happiest girl in the world.
Thank you Tobias for loving me ♥️
I don’t dare,
to stand on higher ground,
I only knelt before Him,
the way I talked to Him,
is to sing worship to Him.
I can’t see His face,
too bright.
But, I know He is the Almighty,
He is my savior,
I feel known and loved.
He is waiting for the time to walk me home 🏡.
Friends, I’m still here.
So, I’m very happy to share with you again the thoughts I had lately.🤗
Honestly, this gonna be my last post 😊.
I hope you won’t forget me fast 😁.
Especially when you see chili 🌶 and ducks 🦆 and birds on your balcony 🐦, remember me 😊
Hello friends, I’m still here. Though it’s very hard for me to read,
and type on my iPhone, but with patience I can do it.
So, I’m very happy to share with you again the thoughts I had lately.🤗
Continue reading “A GIFT OF FORGIVENESS”
As per today, the COVID-19 pandemic has already affected 213 countries, more than 4.5 million people, and taken more than 303.000 lives.
Continue reading “ABOUT WHAT MATTERS”
As per today, the COVID-19 pandemic has already affected 210 countries, more than 2.5 million people, and taken more than 171.000 lives.
Continue reading “LIVING IN WHOLENESS”
As per today, the COVID-19 pandemic has already affected 209 countries, more than 1.6 million people, and taken more than 95.000 lives.
We all kind of live in a bubble where we think we’re indestructible until something like this happens.
Continue reading “HOW TO LIVE WITH DYING”
It’s been almost two weeks that I am back on steroids, as supportive or palliative treatment. My clinical symptoms were increasing, maybe caused by edema, which inexorably leads to a further decrease in my quality of life.
Continue reading “SAVE MYSELF SOME PAIN”
A few days ago, after checking out of our hotel in Frankfurt, I sat in the lobby waiting for Tobias to finish his workshop. As I opened my iPhone, I saw a notification from Facebook stating that several of my posts apparently were against their community guidelines and that they suspended these posts consequently. I requested a review. Then, instantly they deleted my posts and blocked the link to my website www.titien.de. I wasn’t expecting this and I felt very disappointed.
Continue reading “LIFE IS FULL OF SURPRISES”