It’s the same illness
it’s DIPG,
It robs our muscles and bodily functions,
Here are the differences between adults and children being diagnosed with DIPG.
ADULTS DIPG & CHILDREN DIPG
WHY I NEED A SALVATION
I don’t dare,
to stand on higher ground,
I only knelt before Him,
the way I talked to Him,
is to sing worship to Him.
I can’t see His face,
too bright.
But, I know He is the Almighty,
He is my savior,
I feel known and loved.
He is waiting for the time to walk me home 🏡.
THIS IS DIPG
Friends,
I’m still here.
I’m still writing while I still can.
Today, I want to tell my journey with DIPG.
WHY WE DECIDED TO TAKE CARE OF TITIEN AT HOME – AND HOW IT IS DONE – BY TOBIAS
Titien and I are both writing about how we deal with her illness. Especially now that she is getting worse and worse, we get a lot of encouragement, good wishes, offers of help and suggestions on how we could better organize her care.
Continue reading “WHY WE DECIDED TO TAKE CARE OF TITIEN AT HOME – AND HOW IT IS DONE – BY TOBIAS”DO WE NEED TO EARN LOVE? – PART 1
A friend who has been single for quite some time, texted me this:
She: I feel my life here is boring and lonely, even though I am surrounded with family. I am going to a wedding dinner tonight, it makes me feel alone and ’left behind’.
BLIND FAITH FROM CANCER?
One evening last week on the sofa:
Me: Tobi, are you aware of my limited time?
Tobias: Yes… and I’m scared. I want to spend the rest of my life with you.
…
Tobias: I am aware of the circumstances of dipg. There’s no magic pill to cure it. Your treatments now are to prolong your survival time with the highest possible quality of life.
RE-IRRADIATION BEGIN
Today I will start re-irradiation, day 1 of 15 rounds of 2 gy, total 30 gy.
Continue reading “RE-IRRADIATION BEGIN”MY LAMENT
Oh LORD,
You’re my God,
my Father,
my Healer,
my Redeemer,
my Savior.
BEFORE AND AFTER CANCER
Picture tells more.
IF ONLY YOU KNOW
Be present with what is left.
Continue reading “IF ONLY YOU KNOW”