As per today, the COVID-19 pandemic already affected 213 countries, almost 20 million people, and has taken more than 730k lives.
Continue reading “REJOICE IS POSSIBLE”
My condolences and deepest sympathy for them.
Titien and I have a mantra that we’ve been following at least since her being dignosed with DIPG: live in the here and now. What sounds like a hackneyed phrase from the self help literature is actually meaningful to us. We have realized how valuable the time we have left is.
Continue reading “HOW TO LIVE IN THE HERE AND NOW? (by Tobias)”
The Heavenly Father is my Creator.
Continue reading “THE ALMIGHTY”
His Son is my Savior.
The Holy Spirit is my Comforter.
To God be the glory!
She sleeps a lot or dozes off. The tumor in her brain stem paralyzes all her muscles. She can no longer hold her head and if I or an armrest does not support her, she tips over on the sofa or out of the wheelchair.
Continue reading “UNFORTUNATELY TITIEN’S STATE OF HEALTH CONTINUES TO DETERIORATE (by Tobias)”
As per today, the COVID-19 pandemic already affected 213 countries, more than 17 million people, and has taken more than 667.000 lives.I recognize the lossI’m thinking about them who are mourning.My condolences and deepest sympathy for them.
Continue reading “WHY HE LETS ME SUFFER?”
I am loved unconditionally.
Continue reading “LOVE IS THE GREATEST OF ALL”
I am loved physically.
I am loved emotionally.
I am loved spiritually.
I am beyond blessed.
I am the luckiest and the happiest girl in the world.
Thank you Tobias for loving me ♥️
It’s the same illness
Continue reading “ADULTS DIPG & CHILDREN DIPG”
It robs our muscles and bodily functions,
Here are the differences between adults and children being diagnosed with DIPG.
I don’t dare,
Continue reading “WHY I NEED A SALVATION”
to stand on higher ground,
I only knelt before Him,
the way I talked to Him,
is to sing worship to Him.
I can’t see His face,
But, I know He is the Almighty,
He is my savior,
I feel known and loved.
He is waiting for the time to walk me home 🏡.
I’m still here.
I’m still writing while I still can.
Today, I want to tell my journey with DIPG.
Titien and I are both writing about how we deal with her illness. Especially now that she is getting worse and worse, we get a lot of encouragement, good wishes, offers of help and suggestions on how we could better organize her care.
Continue reading “WHY WE DECIDED TO TAKE CARE OF TITIEN AT HOME – AND HOW IT IS DONE – BY TOBIAS”