Reason I am called Superwive.
My husband just got back home from a work trip. Yeay!
At the dining table conversation:
Tobi: “I missed you”.
Me: “I am a superwive. Do you know why ‘superwive’?”
Tobi looks a bit confused, but trying to keep the romance in the air.
Tobi: “err..because you’re beautiful, you’re amazing …you’re..”
Me: “Because I’m a good cook!”
Tobi looks more confused. He then looking straight at me, holding my hands.
Tobi: “Honig, it’s not about you cooking, you’re always amazing for me …(bla bla bla-nice things)…”
Me: “Honey, if I’m just heating the food, I’m not a superwive, I’m a microwive”
Tobi: 😳…… 🤣🤣🤣
Yep, many lame jokes in the Maier’s home.
I think we’re blessed to be a simple person. My husband and me are easy to find things that make us happy, or easy to laugh at funny things.
A delicious meat and cheese platter with fair price makes us happy; sitting on the bench watching male ducks chasing female ducks makes us happy; inventing a “matching the socks” laundry game for me makes my husband happy; watching my chili plants growing makes me happy, can’t wait to eat them; and we’re laughing at jokes and funny videos.
We both understand what is happiness. We both have same mindset about life, about money, about material, about love and happiness.
My husband is blessed because he’s happy with his job, he loves doing what he’s doing now. I think this is rare.
Meanwhile many people I know are feeling stressed-out. On one hand they have their dream, on the other hand is making money. Chasing dream vs chasing money.
Majority will pick the priority to make money, because we live in reality not in a fantasy. I agreed, without money we can’t be happy.
Maybe in some rural areas in Indonesia, it’s possible to survive and be happy being poor. But in big cities, especially in a country that have winter, we need money to buy things to survive and to be happy.
However, at the same time, money can’t buy happiness.
The problem is sometimes we endlessly keep chasing to be the best, to be numero uno, envy and jealous of others. Great problems and conflicts we pierced to ourselves because of money, which lead us living a life with no peace, no love and no happiness.
We forget the real happiness we pursue in life. We focus on one important thing, and we forget another important thing, we forget how to balance.
I will not be here if it’s not because of friendships.
I am blessed for having true friends that constantly praying and supporting me. Friends remembering or visiting me. Not only that, they were also created a pray
group/support group for me on Wechat, on WhatsApp (thanks to internet, social media despite privacy scandal whatsoever), so I can update my situation and they support me in prayer and say encouraging words. Even though we’re live separately in different cities and countries, but I never feel forsaken.
Every person, with sickness or healthy, have our own battles. Some cases, like cancer, financial problems, addiction, depression, etc battles can’t fight it alone. But together we can.
Friendships are one of the most precious things. We treasure and protect precious things in our life.
On one sunny afternoon, sitting at the balcony with my friend:
Claudia: “How are you…really”
Me: “You know, living with DIPG changed my life. I was before quite proud of what I’m doing and my business network, confident of my stunning look, I party hard also.”
“Now I can no longer work, no longer run or doing fitness, no longer see things clearly, constantly beware of my balance, tired easily, sometimes I lost confident of the way I look now with not aligned eyes”
“Now, it’s about blood test every week, symptoms, pain, meet oncologist, taking chemo, waiting for the next mri…”
“But, truly, I never been this happy.”
“I feel satisfied. I lack nothing. I can’t work for career, but I managed to write a blog on Facebook. Last week I applied for German language class again. Hope then I can share my journey in German and make more local friends.”
“I live in a small flat with two balconies, facing a garden with birds chirping every morning and afternoon. By the way, those birds deserve the Grammy award. I live in a quiet not a hustle bustle city, so I can walk peacefully. I breathe no pollution fresh air. Very good health care system. I live a high quality of life.”
“Moreover, I am loved by my precious husband, family and friends. And I have Prince of Peace in me.”
“I don’t know how to put this happiness into words. What I have now is meaningful, I am blessed indeed.”
We both then toast for meaningful happiness in life🥂 , for me, for her, and for all of you.
A feast is made for laughter, wine makes life merry, and money is the answer for everything – Ecclesiastes 10:19
Wisdom is a shelter as money is a shelter, but the advantage of knowledge is this: Wisdom preserves those who have it. – Ecclesiastes 7:12
For the love of money is a root of all kinds of evil. Some people, eager for money, have wandered from the faith and pierced themselves with many griefs – 1 Timothy 6:10
Whoever loves money never has enough; whoever loves wealth is never satisfied with their income. This is too meaningless. – Ecclesiastes 5:10
A happy heart makes the face cheerful, but heartache crushes the spirit.-Proverbs 15:13
I know that there is nothing better for people than to be happy and to do good while they live.-Ecclesiastes 3:12
Is anyone among you in trouble? Let them pray. Is anyone happy? Let them sing songs of praise. -James 5:13
A friend loved at all times, and a brother is born for a time of adversity.-Proverbs 17:17
Do not forsake your friend or a friend of your family, and do not go to your relative’s house when disaster strikes you—better a neighbor nearby than a relative far away.-Proverbs 27:10
If either of them falls down, one can help the other up. But pity anyone who falls and has no one to help them up.- Ecclesiastes 4:10
That is, that you and I may be mutually encouraged by each other’s faith.- Romans1:12
Even though we speak like this, dear friends, we are convinced of better things in your case— the things that have to do with salvation.- Hebrews 6:9
God is within her, she will not fall; God will help her at break of day. -Psalm 46:5
WEEK 48 POST BIOPSY
BRAINSTEM MIDLINE PONTINE GLIOBLASTOMA (DIPG) GRADE IV
UPDATE ABOUT MY TREATMENT:
So far my symptoms are stable.
– My eyes still look in different directions/double vision.
– Balance not so stable, so very slow in climbing stairs and need to hold on holder.
– Walk ok
– Swallow ok
– Breathe ok
– Sometimes speech a little bit slurred but not obvious
– Constant tingling/electrocuted pain along my left shoulder to arm
– Sometimes sharp pain on the right eyelid
– Sometimes pain on my right face
– Sometimes head pressure
– Sleep not as sound as before
– Stiff neck
– Fingers of my left hands and toes of my left foot often turned blue
– Left arm and hand “ice” cold
– Left hand sensitive to cold and heat
– PEG still there, have to disinfect, close it with fresh patch, and inject water to clean the tube, every morning after shower.
– Physiotherapie and Ergotheraphy 3-4 times a week
– Blood test 1 time per week, still always feel nervous with needle
– Meet oncologist and Chemo routine