A reflection of life. My life journey with brainstem cancer.
It’s been almost two weeks that I am back on steroids, as supportive or palliative treatment. My clinical symptoms were increasing, maybe caused by edema, which inexorably leads to a further decrease in my quality of life.
Continue reading “SAVE MYSELF SOME PAIN”
For Indonesians, tourist visas to Israel are only available for group travel through travel agencies for pilgrimage purposes. It’s not easy to get a visa, because the two countries maintain no formal diplomatic ties.
Continue reading “LESSONS FROM ISRAEL TRIP”
Last week was tough.
I got a heart breaking email, a young lady who is a wife and a mother, passed away from complications caused by DIPG.
I read on the Facebook DIPG community how many are dying so young, going so soon.
Continue reading “CHANCE AND COURAGE”
A few days ago, before I fell asleep, I told Tobias that I was looking for inspiration to write for my next post.
Tobias: “you could write something that is not spiritual.”
Me: “I can, but I can’t”
This is not the first time I received a suggestion like this. So, I decided to use this article to ask you to ask me anything, so you’ll get to know me better.
Here are already some questions I got.
Continue reading “ASK ME ANYTHING”
This week I was in Barcelona, and spent the first evening having dinner with our friends. We ordered a bottle of wine. As usual, Tobias checked it out with his wine app. We found that it was produced in the Spanish province of Aragon, close to a place called Borja.
Continue reading “STAND FIRM”
Last week I read some shocking news, a megachurch pastor and mental-health advocate, who reached out helping people dealing with depression and suicidal thoughts, died by suicide.
Continue reading “IN PURSUIT OF TRUTH”
Lately, I’m not doing well.
Most of my time, I stay in bed, I feel tired, I have head pressure, double vision, weak right arm, pain in my left arm, weak legs, sensitive pain on my face.
On Sunday I attended a church in Karlsruhe Durlach for the first time. On Tuesday I received a phone call from them. The lady on the phone asked me how I feel about their service and if I’m interested to come again. Then, she asked me if I am a believer, when and why. I had a flashback…
Continue reading “FANTASTICALLY TRUE STORIES”
There are two boys, they are brothers and in their teenage years. In 2017, the younger brother had been fighting dipg for several months when the big brother himself was diagnosed with thyroid cancer that had spread to the lymph nodes. The unthinkable, both brothers fighting cancer.
The younger brother passed away that year. Now, the cancer of the older brother is progressing.
I read these news posted by a dipg advocate. There I also read and see photos of many children in pain, and remembering those who have passed away because they suffered from DIPG.
My heart is shattered.
Continue reading “THORNY QUESTION”I wrote this on the passenger seat while driving to Frankfurt airport. My aunt is going home to Jakarta after spent a wonderful week here in Germany.
Continue reading “THE ESSENCE OF LIFE”