On Sunday I attended a church in Karlsruhe Durlach for the first time. On Tuesday I received a phone call from them. The lady on the phone asked me how I feel about their service and if I’m interested to come again. Then, she asked me if I am a believer, when and why. I had a flashback…Continue reading “FANTASTICALLY TRUE STORIES”
There are two boys, they are brothers and in their teenage years. In 2017, the younger brother had been fighting dipg for several months when the big brother himself was diagnosed with thyroid cancer that had spread to the lymph nodes. The unthinkable, both brothers fighting cancer.
The younger brother passed away that year. Now, the cancer of the older brother is progressing.
I read these news posted by a dipg advocate. There I also read and see photos of many children in pain, and remembering those who have passed away because they suffered from DIPG.
My heart is shattered.Continue reading “THORNY QUESTION”
I wrote this on the passenger seat while driving to Frankfurt airport. My aunt is going home to Jakarta after spent a wonderful week here in Germany.Continue reading “THE ESSENCE OF LIFE”
One evening last week on the sofa:
Me: Tobi, are you aware of my limited time?
Tobias: Yes… and I’m scared. I want to spend the rest of my life with you.
Tobias: I am aware of the circumstances of dipg. There’s no magic pill to cure it. Your treatments now are to prolong your survival time with the highest possible quality of life.