It’s the same illness
Continue reading “ADULTS DIPG & CHILDREN DIPG”
It robs our muscles and bodily functions,
Here are the differences between adults and children being diagnosed with DIPG.
I don’t dare,
Continue reading “WHY I NEED A SALVATION”
to stand on higher ground,
I only knelt before Him,
the way I talked to Him,
is to sing worship to Him.
I can’t see His face,
But, I know He is the Almighty,
He is my savior,
I feel known and loved.
He is waiting for the time to walk me home 🏡.
I’m still here.
I’m still writing while I still can.
Today, I want to tell my journey with DIPG.
Titien and I are both writing about how we deal with her illness. Especially now that she is getting worse and worse, we get a lot of encouragement, good wishes, offers of help and suggestions on how we could better organize her care.
Continue reading “WHY WE DECIDED TO TAKE CARE OF TITIEN AT HOME – AND HOW IT IS DONE – BY TOBIAS”
A friend who has been single for quite some time, texted me this:
Continue reading “DO WE NEED TO EARN LOVE? – PART 1”
She: I feel my life here is boring and lonely, even though I am surrounded with family. I am going to a wedding dinner tonight, it makes me feel alone and ’left behind’.
One evening last week on the sofa:
Continue reading “BLIND FAITH FROM CANCER?”
Me: Tobi, are you aware of my limited time?
Tobias: Yes… and I’m scared. I want to spend the rest of my life with you.
Tobias: I am aware of the circumstances of dipg. There’s no magic pill to cure it. Your treatments now are to prolong your survival time with the highest possible quality of life.
Today I will start re-irradiation, day 1 of 15 rounds of 2 gy, total 30 gy.
Continue reading “RE-IRRADIATION BEGIN”
Continue reading “MY LAMENT”
You’re my God,