It is one week today that Titien died. The sadness comes and goes in waves. Thank you very much for all the comments, memories, and words of support. I am overwhelmed. Titien touched everybody she interacted with and she was the love of my life.Continue reading “One week of mourning”
when I post this,
it means it’s my time to say goodbye to you.
I am already with my Heavenly Father.
The day before yesterday in the late afternoon Titien had a breathing rate of 35 breaths per minute while lying down. According to Wikipedia, 12-18 is normal for adults. It became better in a sitting position. She wanted me to stay with her and not get on my road bike on the balcony to pedal on the bike trainer for an hour.Continue reading “IN THE TWILIGHT ZONE ON BORROWED TIME”
Here at home it has become much quieter since Titien can no longer speak properly. Of course, it was she who initiated and kept the communication going in our relationship. I miss that.Continue reading “HOW DIPG IS ERODING OUR COMMUNICATION”
As per today, the COVID-19 pandemic already affected 213 countries, almost 21 million people, and has taken more than 750k lives.
My condolences and deepest sympathy for them.Continue reading “YOU ARE LOVED”
As per today, the COVID-19 pandemic already affected 213 countries, almost 20 million people, and has taken more than 730k lives.
My condolences and deepest sympathy for them.
Titien and I have a mantra that we’ve been following at least since her being dignosed with DIPG: live in the here and now. What sounds like a hackneyed phrase from the self help literature is actually meaningful to us. We have realized how valuable the time we have left is.Continue reading “HOW TO LIVE IN THE HERE AND NOW? (by Tobias)”
The Heavenly Father is my Creator.
His Son is my Savior.
The Holy Spirit is my Comforter.
To God be the glory!
She sleeps a lot or dozes off. The tumor in her brain stem paralyzes all her muscles. She can no longer hold her head and if I or an armrest does not support her, she tips over on the sofa or out of the wheelchair.Continue reading “UNFORTUNATELY TITIEN’S STATE OF HEALTH CONTINUES TO DETERIORATE (by Tobias)”