She sleeps a lot or dozes off. The tumor in her brain stem paralyzes all her muscles. She can no longer hold her head and if I or an armrest does not support her, she tips over on the sofa or out of the wheelchair.Continue reading “UNFORTUNATELY TITIEN’S STATE OF HEALTH CONTINUES TO DETERIORATE- BY TOBIAS”
As per today, the COVID-19 pandemic already affected 213 countries, more than 17 million people, and has taken more than 667.000 lives.I recognize the lossI’m thinking about them who are mourning.My condolences and deepest sympathy for them.Continue reading “WHY HE LETS ME SUFFER?”
It’s the same illness
It robs our muscles and bodily functions,
Here are the differences between adults and children being diagnosed with DIPG.
I don’t dare,
to stand on higher ground,
I only knelt before Him,
the way I talked to Him,
is to sing worship to Him.
I can’t see His face,
But, I know He is the Almighty,
He is my savior,
I feel known and loved.
He is waiting for the time to walk me home 🏡.
I’m still here.
I’m still writing while I still can.
Today, I want to tell my journey with DIPG.
Titien’s symptoms continue to change. Unfortunately, not for the better. She has almost no strength left in her muscles. I suspect the cause for this is the progress of her brain tumor, the high dosage of cortisone, and the fact that her muscles are breaking down due to lack of exercise.Continue reading “MUSCLE WEAKNESS. – BY TOBIAS”