I am loved unconditionally.
I am loved physically.
I am loved emotionally.
I am loved spiritually.
I am beyond blessed.
I am the luckiest and the happiest girl in the world.
Thank you Tobias for loving me ♥️
::: FAITH, HOPE, LOVE
Life is full of situations,
oftentimes we have faith,
oftentimes we know laws,
oftentimes we have hope,
but do we love God?
there can be no true faith，
and loveless hope is an oxymoron.
::: WHY LOVE IS THE GREATEST
I often say you’re loved.
I am convinced it’s the truth.
Often we do research or we reflect,
what is the most important thing in our life,
Often we forget the immensity of the truth,
that God loves us,
in the frailty and the struggle,
with which we live.
Love has no beginning,
love has no end.
In the past,
when situations appeared hopeless,
when things went from bad to worse in my life.
I blamed myself,
I felt condemned,
I thought it was because I didn’t have enough faith and hope.
Until 3 years ago,
in a hospital bed,
I truly understood,
it is not just about faith and hope,
what made me a Christ follower,
it is more than that,
it is love.
God is love.
I am loved and I love Him.
I understood then,
faith and hope alone cannot produce love,
but love alone can produce faith and hope in my heart.
God is love,
He was willing to sacrifice his Son who died on the cross,
so you and me are reconciled with the Almighty,
and we can enter eternity.
So now faith, hope, and love abide,
but the greatest of these is love.
Check this out:
“Beloved, let us love one another, for love is from God, and whoever loves has been born of God and knows God. Anyone who does not love does not know God, because God is love.”
1 John 4:7-8 ESV
PLEASE FEEL FREE TO SHARE OR TO USE ANY OF MY STORIES AND PHOTOS TO INSPIRE OTHERS OR TO RAISE DIPG AWARENESS.
::: UPDATE ABOUT ME
3 Years 3 months Post Biopsy
Midline Pontine Glioblastoma/DIPG Grade IV
Now, Tobias takes care of me completely.
I 100% depend on Tobias, on everything.
I hope miracles happen,
I have asked God,
to allow me at the end of my life,
To have the strength to type and to swallow.
Sometimes I cry by myself,
I love Tobias so much.
I want to let him sleep more,
but I need water and to turn in bed,
I can’t do it by myself,
it’s a dilemma for me.
To wake him up or not.
So many things I want to express,
that I love him,
and I consider him,
but sometimes it’s against my needs,
I don’t know what I should do.
Sometimes I can only cry.
Tobias, I am sorry,
I love you so much, but,
I demand a lot of you,
honestly it pains me to see that I cause you pain.
But I need you to help me.
I hope you can bear with me a little longer.
I can’t hold my neck anymore.
I need a neck pillow.
I fall whenever I don’t sit up straight.
I lost all of my muscles and bodily functions.
I cannot control my balance anymore.
I am getting worse rapidly, day by day.
Dexamethasone doesn’t slow down my symptoms from worsening.
Following the advice of my doctors,
I keep decreasing dexamethasone every few days.
She wants me to go until 4 mg and 2 mg.
It’s too fast for me.
I am retaining so much water in my body.
I currently take 5 mg during breakfast (9 am), 5 mg during lunch (2 pm ).
Maybe after few days,
I will go down to 5-4.5 mg.
Let’s see how my body tells me.
Tobias gives me kisses,
I am so loved unconditionally by Tobias ♥️.
I depend 100% on him.
I have to learn to be patient with myself and trust that I don’t burden Tobias.
Tobias is in pain too.
He needs to lift me up and hold my neck and head,
whenever I need him.
Somehow we now know how to do it better.
I am almost 100 % crippled,
I am almost 100 % disabled,
I almost 100 % lost my muscles,
I almost 100 %. lost my bodily functions,
Yet, inside my head is still the same Titien.
I know ,
I can’t do anything about it.
Just so thankful for Tobias ♥️