ABOUT WHAT MATTERS

As per today, the COVID-19 pandemic has already affected 213 countries, more than 4.5 million people, and taken more than 303.000 lives.

I read that COVID-19 poses a threat to vulnerable communities that are already coping with high levels of hunger. It is estimates that 135 million people in 55 countries currently face acute hunger – mostly as a result of the pandemic, conflicts, and the effects of climate change and economic crises.

Friends, we may not be able to feed the 5000. But, we can share our bread and fish.

::: ALWAYS BE THANKFUL

People may think I’m struggling with cancer,
and I have nothing left but suffering.
They are so wrong.
In my heart I feel joy, love and contentment.
I have everything.

I have a roof over my head,
I have a good place to sleep,
I have clothes and shoes,
I have food on my table,
I have a fine family,
I have a wonderful and handsome husband,
I have friends,
I have birds visiting me everyday on my balcony.
In good times and bad times,
I have strength and hope,
I’m beyond blessed.

Lately, I always wake up very early at 4am.
It’s still dark and quiet outside.
The first thing that comes in to my mind
is to thank my Heavenly Father,
for giving me another new day.

I pray what Jesus taught me to pray.
I sing worship songs until the birds start their concert before sunrise, around 5 am.
They sing so loud and lively for an hour.
I enjoy them so much.

Being grateful and thankful
makes me happy for a whole day.
I am aware that this is my moment,
it’s a wonderful gift given to me,
and it’s valuable.

Being grateful changes my heart.
It brings me courage and eliminates fear,
it brings me the sense of enough (grace) and not a sense of scarcity,
it drives me to share what I have,
to share encouragement with you,
and to help the needy and the poor.

::: ALWAYS MAINTAIN A GOOD RELATIONSHIP

I am blessed with a good relationship.
I think it makes me radiate happiness.

I never feel lonely.
I never feel isolated.
I am so connected to my husband, Tobias,
to my family and to my best friends.
I have a very good quality of marriage with lots of affection and love.
I can count on Tobias when the going gets tough.
I feel secure, loved, and satisfied.

Even though my physical discomfort rises,
my mood stays happy.
I learned,
it’s not fame, not wealth, not great achievement,
that we needed to go after to have a good life.
But healthy relationships,
with our loved ones,
with our family, our friends, our community.
This is what matters most.

Friends,
Life is too short for bickering, heartburning, calling names.
There’s only time for loving.
Let’s open our heart and senses,
let’s replace our isolated time in front of a screen with people time- online and offline
let’s revive our old relationships,
let’s reach out to that family member who we haven’t spoken to in years,
let’s forgive and don’t hold grudges,
let’s embody our love for others.
When we are grateful,
we can enjoy what we have,
we can be a gift to humanity.
So, remember to always be grateful 😊

Love,
Titien

Listen to this 😊

“Therefore let us be grateful for receiving a kingdom that cannot be shaken, and thus let us offer to God acceptable worship, with reverence and awe,”
‭‭Hebrews‬ ‭12:28‬ ‭ESV

“But be doers of the word, and not hearers only, deceiving yourselves.”
‭‭James‬ ‭1:22‬ ‭ESV‬‬


::: UPDATE ABOUT ME
3 Years Post Biopsy
Midline Pontine Glioblastoma/DIPG Grade IV

On Thursday, May 28th I will receive the 33rd round of Avastin. My doctor still wants me to continue with this treatment.

Yesterday, on May 14th I had a FET-PET-scan to see where my tumour is actively progressing. I’m still waiting for the result sent to me by mail. Yeah, somehow the pandemic is delaying my treatment, including not being able to see my doctor and talk to her.

I am getting worse pretty rapidly, day by day.
For now, I increased dexamethasone to 10 mg daily. It doesn’t slow down my symptoms from worsening. There are no new symptoms, but all my symptoms get more intense. It pretty much limits everything I want to do. Every movement feels unfocused and heavy. I have difficulty forming words and speaking, my voice sounds nasal, I need a rollator to move at home, I have severe head pressure, double vision, balance issues, bowel issues to the point where I can’t control my bowel anymore, tingling pain on my left arm and on my face, weakness of my right arm, and many fits of laughter. I need to be in a wheelchair when leaving my flat.

Please go to “My Medical History” for more details.

Thanks for remember me and my family in your prayers 🙏

PS: Thank you for reading, commenting and sharing my posts.
Please subscribe to get updates by mail. 🤗

Grateful for everything I have.
I’m beyond blessed 🥰
Tobias makes breakfast everyday
A park close to home 🏡
A loyal visitor.
She eats, drinks, then shits on my balcony 😅
Who clean it? Of course, Tobias 😁
I’m loved unconditionally ❤️
So much affection 🥰😘
I became a cereal killer too 😎
Best friends who’re like sisters I never had.
Kayan in Hongkong 🇭🇰 and Ashlee in Singapore 🇸🇬
So lucky to have them ❤️
Another visitor.
Lately she (a sparrow) takes over the feeding house from blue tits.
She’s not shy anymore 🧐
Yesterday, ready for FET SCAN
Tobias shaved his head by himself 😁
Looks good?
He didn’t want to go to barbershop (which reopen again now) to protect me 🙂

22 Replies to “ABOUT WHAT MATTERS”

  1. Love to see you at the park-looks like a nice park. My neighbor has bird feeders & I just love all the activity…I had never really noticed how calming & entertaining they are. I’m glad you are able to enjoy them. Many prayers for good results & for relief. Always praying.

  2. Miss you so much roommie! We are roommie forever! Fight the good fight roommie! No matter how hard is the journey, you have been encouraging us… By counting the blessings! You always my wonderful and beautiful sister! You are an angel who brings light and life! Jia you!

  3. Halo Titien…
    Thank you for faithfully sharing your stories with us. Praying for you & Tobias from Indonesia. What you’ve been through lately ain’t easy at all. However, your heart overflows with joy. It reminds me of Bible verse from 2 Corinthians 4:16 (NIV)
    “Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day.”

    Blessed by your story,

    Catharina
    (I’m the bicf indonesia pastor’s wife. we met in bicf in 2018 when Ka Yan introduced us to each other. Masih ingat ngga yaa?)

    1. Hi Catharina,
      inget donk 🤗. Udah di Indo ya. Aduh lagi ngidam nasi padang, somay, es kacang, dll jajanan Indo 😂. Thanks buat inget aku di dalam doa ya, dan buat kata2 penguatan. Tuhan bener2 baik dan setia selalu, nyata di hidupku, jadi ga khawatir la 😁. Sukses pelayanannya ya, selalu sehat 😊. Gbu & love -T

  4. Hi Titien:

    Very encouraging article! thank you for taking the time to write so constantly. It’s so great that you get to hear that kind of a concert everyday. To me, nature connects me with God in a very powerful way. You are in our prayers.

    Have a good weekend!

    Romer&Linda

    1. Hi Romer & Linda,
      Thanks for reading my stories and remembering me in your prayers.
      Stay safe and stay healthy ❤️🤗
      Blessings, ~T

  5. Gw speechless bacanya. Loe jauh lebih kuat drpd org yg paling sehat. Dan gw bangga dengan kekuatan iman loe. Gw cuma bisa bantu lewat doa buat loe… Kuat terus Y Tin.. JBU ABUNDANTLY

  6. You are in my/our prayers titien and we’re blessed to hear fr you and in keeping and holding to to our Lord Jesus Christ inspite of the hard things you are going through day in day out.Thank God also for your loving husband Tobias.Praying for His grace,love,sustenance and His miracle healing and power to embrace and touch your whole body soul and spirit from head to toes and internally and externally inJesus Precious and Loving Glorious Name.Amen and Amen!🙏👨‍👩‍👧👆💒Psalm103,Numbers6:24-26 &Philippians4:4-9,13 &19❤😇

    1. Amen Ian. Thanks for reading my stories and remembering me in your prayers ❤️🙏🤗
      Blessings, -T

  7. Thank you for sharing your story. This reminds me of my granddaughter Trinity Jane (Chinchin ) who passed away last year because of DIPG. She was 12 years old when she left us. Thanks again. Lots of love from the Philippines.

    1. Hi Robert,
      I’m so sorry for the loss of your Chinchin. I hope these past months you got lots of comfort and love from people around you. I believe that there’s so much loving sweet memories with Chinchin. One day we will meet her again in the eternal kingdom. Till then, I hope you stay happy, stay safe and stay healthy 🤗. -Titien

  8. Be grateful. Such a simple but important thing, and so easy to forget in day-to-day life. Thanks once again for the reminder, Titien. Hugs and love from Barcelona.

  9. Thank you for the joy you bring in your posts, that your faith brings and the light you shine for all of us, but mainly for Tobias. Sending you both love and prayers.
    Much love,
    April

    1. Thanks April.
      Have a wonderful and happy Sunday 🤗
      Stay safe and stay healthy ❤️
      Love,
      Titien

  10. Hi Titien
    Thanks for letting your readers know about what really matters and caring about others in the midst of your own adversities and worries. ❤️❤️
    I’m hoping and praying for a good and speedy result of the FET-PET-scan that will permit you to start radiotherapy soon and give you and Tobias more time together. Tobias’ coiffure looks good, by the way.
    Stay safe.
    Love
    Elisabeth

    1. Hi Elisabeth,
      yes Tobias is a handsome man 😁. With beard, without beard, long hair, shaved, all good on him 👍😄. Thanks for your good wishes 🥰. Have a wonderful week, and stay safe and stay healthy ❤️
      Love, – Titien

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