I follow the page of DIPG Support and Awareness. I read a girl today celebrating her 8 years old birthday, she is 4 years living with DIPG. An odd and wonderful story in DIPG world.
„WHY IT DOESN’T WORK?“ weiterlesenI AM NO VICTIM!
This early morning, I was crying and sad assuming some of our friends might think how poor we are, especially my husband, having a wife with a fatal brainstem tumor. Guilt grabbed my heart and mind, what is good things left from me I could give him? I am just a burden. Negativity kept punching me more, tried to drown my soul.
„I AM NO VICTIM!“ weiterlesenDEATH IS UNAVOIDABLE
Good and bad people at the end are the same, everyone will facing death . So what makes difference?
„DEATH IS UNAVOIDABLE“ weiterlesenTumor is Progressing 5 Months After Radiation
I am 36 years old daughter and wife. In May 2017, the biopsy result confirmed the initial diagnosis DIPG grade IV WHO, a rare tumor that grow in the pons of the brainstem.
„Tumor is Progressing 5 Months After Radiation“ weiterlesenTaking a Plane after Radiotherapy
Last month my doctor was a bit skeptical about me traveling to Barcelona. After knowing why (doctor worries symptoms worsens while I am overseas, but for flight it’s ok), me and husband decided to go.
„Taking a Plane after Radiotherapy“ weiterlesenHigh Dose Cortisone Effects
High dose cortisone steroid changes my physical appearance.
„High Dose Cortisone Effects“ weiterlesen6 Weeks Radiotherapy
I am home safe and sound from 9 days trip to Barcelona. I thank my Lord Jesus for the strength and my loving husband for took good care of me travelling BCN. I enjoyed eating delicious food and exploring the city. Although it‘s winter but the sun shine and warm, and boost my mood. Looked at the sea and people relaxing on the beach makes my heart smile. Must be great to be here in summer.
„6 Weeks Radiotherapy“ weiterlesenRobot-assisted Stereotactic Biopsy
22 May 2017, I underwent robot assisted stereotactic biopsy.
„Robot-assisted Stereotactic Biopsy“ weiterlesenCerebral Angiography
I did cerebral angiography in May 2017 a week before biopsy. Here is some information through Q&A with me:
„Cerebral Angiography“ weiterlesenLumbar Puncture
I had lumbar puncture in March 2017 after diagnosed with a lesion that grow in pons. Here is some information through Q&A with me.
„Lumbar Puncture“ weiterlesen