She sleeps a lot or dozes off. The tumor in her brain stem paralyzes all her muscles. She can no longer hold her head and if I or an armrest does not support her, she tips over on the sofa or out of the wheelchair.Continue reading “UNFORTUNATELY TITIEN’S STATE OF HEALTH CONTINUES TO DETERIORATE (by Tobias)”
As per today, the COVID-19 pandemic already affected 213 countries, more than 17 million people, and has taken more than 667.000 lives.I recognize the lossI’m thinking about them who are mourning.My condolences and deepest sympathy for them.Continue reading “WHY HE LETS ME SUFFER?”
I am loved unconditionally.
I am loved physically.
I am loved emotionally.
I am loved spiritually.
I am beyond blessed.
I am the luckiest and the happiest girl in the world.
Thank you Tobias for loving me ♥️
It’s the same illness
It robs our muscles and bodily functions,
Here are the differences between adults and children being diagnosed with DIPG.
I don’t dare,
to stand on higher ground,
I only knelt before Him,
the way I talked to Him,
is to sing worship to Him.
I can’t see His face,
But, I know He is the Almighty,
He is my savior,
I feel known and loved.
He is waiting for the time to walk me home 🏡.
I’m still here.
I’m still writing while I still can.
Today, I want to tell my journey with DIPG.
Titien and I are both writing about how we deal with her illness. Especially now that she is getting worse and worse, we get a lot of encouragement, good wishes, offers of help and suggestions on how we could better organize her care.Continue reading “WHY WE DECIDED TO TAKE CARE OF TITIEN AT HOME – AND HOW IT IS DONE – BY TOBIAS”
what a surprise- surprise 🤣
I thought it’s gonna be my last post .
I’m still here. 🤣
I’m still writing while I still can 🤪😜☺️
and I won’t claim again to write my last post.
I will just keep writing for as long as I can.
Titien’s symptoms continue to change. Unfortunately, not for the better. She has almost no strength left in her muscles. I suspect the cause for this is the progress of her brain tumor, the high dosage of cortisone, and the fact that her muscles are breaking down due to lack of exercise.Continue reading “MUSCLE WEAKNESS. – BY TOBIAS”
Friends, I’m still here.
So, I’m very happy to share with you again the thoughts I had lately.🤗
Honestly, this gonna be my last post 😊.
I hope you won’t forget me fast 😁.
Especially when you see chili 🌶 and ducks 🦆 and birds on your balcony 🐦, remember me 😊