HOW TO HANDLE CHANGE

The world is unprepared for COVID-19.
Many families in many countries lose their loved ones to this horrific virus,
and my heart grieves witnessing this whole mess the pandemic brings.

Why does it happen this way?
Is this really the end?
Death comes not merely as a tragedy,
but as an atrocity of this unseen force.

The world cycle changes.
We no longer can do things the way we’ve always done them,
we no longer want things the way we’ve always wanted them.

We work, we play, we toil, we struggle, we endure, we invent, we fight, we destroy, and in the end, we ourselves end.
Under the sun, all is meaningless.

Changes come, and mother nature forces humanity to accept the change.

::: TRANSFORM THE PERSPECTIVE

The world is swirling through this process of changes with COVID-19.
In the meantime, I struggle with my worsening symptoms.

It’s been almost 3 years now post-biopsy, which gave me the definite diagnosis of late stage incurable brain cancer (DIPG). Lately, my symptoms are worsening quite fast.

From all symptoms,
there are 2 things which annoy me the most:
I have difficulty with speaking,
I often have fits of laughter, including all by myself.
I feel embarrassed about it and at times I cry.
But, Tobias gives me confidence.
He assures me that there is nothing to feel embarrassed about my symptoms.
He puts me on a better level in life,
and reminds me to enjoy my life to the fullest.

DIPG does affect me in everyday things.
But, I don’t see my life as meaningless.
My faith in Christ gave me a perspective of how to leverage and how to harness the now.
Life has a destination point.
Death is not a full stop,
it is a comma.
This perspective gives me the true freedom.

I do see challenges and I do need help with things.
I feel that we all as a human beings need help sometimes.
Needing help is not a blockage or a limitation.

My disease and disability are my ability to encourage others.
Through my life stories,
I wish people can see that love exists,
and hope exists, and life is precious.
This is my purpose,
and I’m just taking every action and every step to follow.

::: ABIDE IN TRUTH

Many people suddenly get diagnosed with COVID-19 and within a few days they’re gone.
It’s a reminder to me that death is a moment that we don’t know of, but it will come.

We never know what news lie ahead.
Time inexorably moves on.
Things come and go.

Earth’s glory will pass away,
change and decay is all around us,
but, I see the Almighty God who changes not,
so, abide in Him.

This ‘stay home’ moment maybe signifies a chance to pause, and ask ourselves, ‘why are we alive?’
And ask God, ‘what is it He’s made us for?’

When we find out the answer,
our last breath will be one of delight,
and waiting for the divine praise, “well done”.

Friends,
you maybe in struggle and in pain.
Hang in there.
Jesus Christ will pilot you through the most treacherous areas of your life,
that’s the promise He holds for you.
He will meet you in the way you need Him.
He will provide for your needs, especially when you’re totally helpless.
Remember,
His words and promises cannot be broken.
He is our savior.
This is a beautiful truth.
Abide in Him.

Love,
Titien

“As the Father has loved me, so have I loved you. Abide in my love. If you keep my commandments, you will abide in my love, just as I have kept my Father’s commandments and abide in his love. These things I have spoken to you, that my joy may be in you, and that your joy may be full. “This is my commandment, that you love one another as I have loved you.”
‭‭John‬ ‭15:9-12‬ ‭ESV‬‬

“Heaven and earth will pass away, but my words will not pass away.”
‭‭Matthew‬ ‭24:35‬ ‭ESV

“For the mountains may depart and the hills be removed, but my steadfast love shall not depart from you, and my covenant of peace shall not be removed,” says the Lord, who has compassion on you.”
‭‭Isaiah‬ ‭54:10‬ ‭ESV‬‬

“for “All flesh is like grass and all its glory like the flower of grass. The grass withers, and the flower falls, but the word of the Lord remains forever.” And this word is the good news that was preached to you.”
‭‭1 Peter‬ ‭1:24-25‬ ‭ESV‬‬


::: UPDATE ABOUT ME
2 Years 10 Months Post Biopsy
Midline Pontine Glioblastoma/DIPG Grade IV

On April 1st, I received the 29th round of Avastin.
On April 15th, I’m scheduled to do an MRI. Hope for good result.

For now, I take 2 mg of dexamethasone daily. It doesn’t slow down my symptoms from worsening. There are no new symptoms, but all my symptoms get more intense. I have difficulty speaking, my voice sounds nasal, I have difficulty walking, head pressure, double vision, balance issues, bowel issues to the point where I can’t control my bowel, tingling pain on my left arm, weakness of my right arm and many fits of laughter.

Please go to “My Medical History” for more details.

Thanks for keeping me in your prayers 🙏

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Stay home play puzzle 🧩
I placed the 1000th puzzle piece 🧩
😷
We’re doing self quarantine.
Hello from Singapore 🇸🇬, Hongkong 🇭🇰, Germany 🇩🇪
We’re praying for the families of COVID-19 victims and for people affected by it.

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